Useful Links

These are some links to other useful myeloma resources. If you have any other links that you feel could be included here, please email the webmaster at admin@myeloma.org.au.

Myeloma Specific Information Resources

International Myeloma Foundation (IMF)

www.myeloma.org
Tel: 001 818 487 7455
Fax: 001 818 487 7454
Email: TheIMF@myeloma.org

An International charitable organisation that informs and supports those affected by myeloma. Provides a comprehensive range of patient material available from their website. Information is also available in a range of languages.

Myeloma UK

www.myeloma.org.uk
Tel: +4 131 556 9720
Email: myelomauk@myeloma.org.uk

A UK based charity that informs and supports people affected by myeloma, and helps to improve standards of treatment and care through education and research. A comprehensive range of patient information material is available to download on line.

Myeloma TV by Myeloma UK

www.myelomatv.org.uk

This is an initiative of Myeloma UK and shows a number of video clips of patients and doctors explaining myeloma and its treatments. It is very informative however it does require a fast
internet connection.

Multiple Myeloma Research Foundation (MMRF)

www.multiplemyeloma.org
Tel: +203 972 1250
Email: info@themmrf.org

Charitable organisation that provides information for those affected by myeloma whilst funding a large amount of medical research. Comprehensive range of patient information material.

Australian Organisations

Cancer Australia

canceraustralia.gov.au
P O Box 1201
Dickson ACT 2602
Tel: (02) 6200 1700
Fax: (02) 6200 1799

An organisation, established as an initiative of the Australian Government, Department of Health
& Ageing to help reduce the impact of cancer for all Australians.

The Leukaemia Foundation of Australia

www.leukaemia.org.au
GPO Box 9954
In your capital city
Toll free: 1800 620 420

A national not-for-profit organisation dedicated solely to the care and cure of patients with leukaemia, lymphoma, myeloma and related blood and marrow disorders. They provide a range of support services that includes the provision of information, education, support, accommodation and transport.

The Cancer Council of Australia

www.cancercouncil.com.au
Cancer Helpline: 13 11 20

A national charitable organisation whose mission is to defeat cancer by building a cancer smart community. It aims to do this by focusing on five priority areas: research; patient support and information; cancer prevention and screening; advocacy; working in the community and fundraising.

Provides a free and confidential telephone information and support service staffed by specialist cancer nurses.

Carers Australia

www.carersaustralia.com.au
Toll free: 1800 242 636

An Australian Government initiative, Carers Australia represents the needs and interests of carers at a national level. For information and support carers can call the Commonwealth Carer Resource Centre in their state or territory. A comprehensive information kit is available along with a variety of fact sheets available online.

Cancer Institute of New South Wales

www.cancerinstitute.org.au

The Cancer Institute NSW is the first statewide, government supported, cancer control agency. It has a ‘Patient and Carers’ section that provides a number of useful publications to assist cancer patients and their families.

Click on the ‘Standard cancer treatment protocols’ section of the web site (CI-SCaT) then click the ‘Patient and Carers’ tab, to find patient information sheets on the common treatment combinations
for myeloma.

Other Useful Organisations

The National Cancer Institute (USA)

www.nci.nih.gov

An extensive website with excellent information on all cancers and treatments. Comprehensive overview of myeloma with a glossary of terms provided.

Memorial Sloane Kettering Cancer Centre

www.mskcc.org (USA)

The Memorial Sloane Kettering Cancer Care Centre aims to complement mainstream Cancer Care. They have a link to their “About Herbs, Botanicals and Other Products” site to access reliable information about herbs and supplements. Always discuss any complementary medicine with the doctor before taking. Some natural products can interfere with the treatments used for myeloma.

Department of Human Services

www.humanservices.gov.au (Australia)

The Department of Human Services is responsible for the development of service delivery policy and provides access to social, health and other payments and services. Centrelink and Medicare are now incorporated in this website. Information on how access to 5 allied health visits per year via the Chronic Disease Management Program can be found here.