PBAC meeting July 2020

At the upcoming Pharmaceutical Benefits Advisory Committee (PBAC) meeting in July, there will be two submissions made relating to drugs that are used to treat myeloma, namely daratumumab and carfilzom...

PBS update: Lenalidomide maintenance and changes to bortezomib access due to COVID19

Lenalidomide (Revlimid®) maintenance post autologous stem cell transplant We are delighted to announce that as of 1 April 2020 the pharmaceutical benefits scheme (PBS) have listed lenalidomide (Revlim...

Coronavirus and our Information & Support Groups

Our Information and Support Groups are informal gatherings for people living with myeloma, their family and friends. These meetings provide a safe space to meet other members of the myeloma community ...

Kai’s Journey to become an Ultramarathoner

The Journey By Kai Kasad Last year, at a Wednesday speed session at the Burwood Athletics track, I came across a thought while warming up/cooling down with a runner friend.
 I mentioned that night how...

ASH conference 2019

Earlier this month, a team from Myeloma Australia visited Orlando, Florida in the USA for the annual American Society of Hematology (ASH) conference as invited guests of the International Myeloma Foun...

PBAC Meeting Nov: Daratumumab combination and Pomalidomide combination

A couple of weeks ago we sent out a special advocacy edition of the Muster to inform you of the latest submissions to the Pharmaceutical Benefits Advisory Committee (PBAC) for the upcoming November PB...

Cytogenetic testing in myeloma: The MMprofiler™

Cytogenetics is the study of chromosomes within a cell. Most commonly done at diagnosis, cytogenetic testing identifies the genetic mutations which characterise a person’s myeloma. This information he...

Big Al’s Blog

Back Testing in South Australia Day 1 – 3 – Park Rating 4 stars We started our trip on the 26 November having left Patterson Lakes at 11.00 heading off for our first two-night stop over. The tri...

American Society of Hematology (ASH) Conference 2018

A team from Myeloma Australia visited San Diego USA in December 2018 as invited guests of the International Myeloma Foundation (IMF). This gave us the opportunity to attend the world’s largest haemato...

10 Years

Back in December 2007 I was browsing the job classifieds in the local paper and came across an ad for an administration officer for the Myeloma Foundation of Australia Inc. I started at the end of Jan...