Consumer comments open for CAR-T cell therapy funding for myeloma in Australia

Consumer comments open for CAR-T cell therapy funding for myeloma in Australia What is CAR-T cell therapy? CAR-T stands for ‘Chimeric Antigen Receptor T Cell’ and is a type of treatment known as an im...

Launch of Australia’s biggest myeloma awareness campaign – 38mate

Every week, 38 Australians are diagnosed with myeloma, an incurable blood cancer that develops in the bone marrow. Despite this, many people have never heard of myeloma until they, or a loved one, are...

People living with myeloma to benefit from new Government funded medicine

Myeloma Australia welcomes today’s announcement by the Federal Government that the medicine Darzalex® (also known as daratumumab) will be available on the Pharmaceutical Benefits Scheme (PBS) for Aust...

PBAC meeting July 2020

At the upcoming Pharmaceutical Benefits Advisory Committee (PBAC) meeting in July, there will be two submissions made relating to drugs that are used to treat myeloma, namely daratumumab and carfilzom...

PBS update: Lenalidomide maintenance and changes to bortezomib access due to COVID19

Lenalidomide (Revlimid®) maintenance post autologous stem cell transplant We are delighted to announce that as of 1 April 2020 the pharmaceutical benefits scheme (PBS) have listed lenalidomide (Revlim...

Coronavirus and our Information & Support Groups

Our Information and Support Groups are informal gatherings for people living with myeloma, their family and friends. These meetings provide a safe space to meet other members of the myeloma community ...

Kai’s Journey to become an Ultramarathoner

The Journey By Kai Kasad Last year, at a Wednesday speed session at the Burwood Athletics track, I came across a thought while warming up/cooling down with a runner friend.
 I mentioned that night how...

ASH conference 2019

Earlier this month, a team from Myeloma Australia visited Orlando, Florida in the USA for the annual American Society of Hematology (ASH) conference as invited guests of the International Myeloma Foun...

PBAC Meeting Nov: Daratumumab combination and Pomalidomide combination

A couple of weeks ago we sent out a special advocacy edition of the Muster to inform you of the latest submissions to the Pharmaceutical Benefits Advisory Committee (PBAC) for the upcoming November PB...

Cytogenetic testing in myeloma: The MMprofiler™

Cytogenetics is the study of chromosomes within a cell. Most commonly done at diagnosis, cytogenetic testing identifies the genetic mutations which characterise a person’s myeloma. This information he...

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