Who we are
Myeloma Australia is the only myeloma‑specific not‑for‑profit organisation in Australia, dedicated to supporting, educating and empowering people living with myeloma and their loved ones.
We exist to support, educate, inform, empower and bring hope to people who are living with myeloma, and their loved ones.
We raise community awareness and understanding of myeloma; educate health professionals involved in the care and treatment of those living with myeloma; advocate for improved patient access to the latest treatments at affordable prices; and facilitate myeloma research in Australia.
Myeloma Australia provides up to date information and caring support via our Specialist Myeloma Nurses. All our services are provided free of charge to ensure equitable access. Our services include:
- Specialist Myeloma Nurses
- Telephone Support Line
- Information and Support Groups
- Patient and carer information resources
- Myeloma seminars, workshops and video links
Myeloma Australia is a not-for-profit organisation, endorsed by the Australian Taxation Office as a deductible gift recipient (DGR) and has charity tax concessions status.
Our Mission
Myeloma Australia’s mission is to facilitate myeloma research in Australia, to support and inform those living with the disease and educate those involved in its care and treatment.
Myeloma Australia is determined to raise community awareness and understanding of myeloma, and to improve patient access to the latest treatments at affordable prices.
Purpose
Myeloma is no longer a niche or secondary cancer, nor is it rare. With more than 22,000 Australians affected and diagnosis rates rising rapidly, it demands clear, dedicated focus.
Myeloma Australia exists to serve one community, with a singular purpose — to support, advocate for, and accelerate progress toward a cure for myeloma.
Standing strong and independently allows us to:
- Build public awareness around the unique burden of myeloma,
- Advocate with a focused, unambiguous voice,
- Partner more meaningfully with media, government, and philanthropy, and
- Deliver more targeted support to patients and families.
Where others generalise, we go deep. Where others spread attention across diseases, we deliver impact for one.
Independence gives us clarity, authority, and the power to truly lead.
Our history
Myeloma Australia was formed in 1998 by a small number of driven people who were each profoundly affected by myeloma. They discovered for themselves that the path to myeloma diagnosis was often slow and uncertain, and that reliable information and access to support was scarce.
Their response was to come together to form Myeloma Australia, in order to make the path easier for others in the future.
One of our founders – Brian Rosengarten OAM – is still actively involved with Myeloma Australia as past president and board member. Another of our founders – Bob Moran, OAM – was also actively involved as our Patron up until he passed away in June 2020.
Prompted by their health professionals, three couples who were impacted by myeloma (Bob and Glenys Moran, Brian and Roslyn Rosengarten and Donald and Judith Brown) met in August 1998.
They shared a desire to encourage the government, universities, scientists and the general public to dedicate time and money towards research into myeloma.
At that time their own investigations had indicated that very little scientific research was being directed towards the understanding and search for a cure for myeloma in Australia.
They embarked on a mission to change this, leading to the birth of Myeloma Victoria, which later joined with other like-minded organisations in New South Wales and South Australia to become The Myeloma Foundation of Australia, now known as Myeloma Australia.
A message from Myeloma Australia Chairman, Jeffrey Browne
Our people
Our ambassadors
Meet prominent Australian ambassadors supporting myeloma awareness and research. Read their personal stories and commitment to finding a cure.
Our team
Our team combines clinical expertise, community programs and essential support services to provide free, trusted information and care for people living with myeloma across Australia.
Our board
The Board provides strategic oversight and governance for Myeloma Australia. Their diverse expertise ensures our programs, services and advocacy remain aligned with the needs of the myeloma community.
Myeloma Community Advisory Board
The Myeloma Community Advisory Board brings people living with myeloma together with Myeloma Australia to guide programs, advocacy and community support.
Myeloma Scientific Advisory Group
Myeloma Australia’s Medical and Scientific Advisory Group (MSAG) unites leading haematologists and scientists to drive myeloma research, education and advocacy.
Telephone Support Line
Talk directly with our specialist myeloma nurses who understand exactly what you’re going through.
Use our simple booking form below to schedule your personalised consultation at a time that works for you.
Get the expert guidance and emotional support you need, when you need it most.
Connect with us
Stay informed with the latest myeloma research, treatment updates, and support resources. We offer tailored newsletters for both patients and healthcare professionals with relevant information and community updates.
