Share your experience for research
Share your myeloma journey to help research! Shape future care and make your voice heard in studies on treatment and daily life.
In addition to clinical trials that investigate new treatments for myeloma, there are also many research initiatives that are more focussed on improving the lived experience of myeloma.
Here are some current projects seeking participants willing to share their experience of living with myeloma.
Community and Patient Preference Research (CaPPRe)
Community and Patient Preference Research (CaPPRe)
Understanding what people with myeloma want from their treatment
CaPPRe is working with Johnson & Johnson to speak with people around the world who have been diagnosed with Multiple Myeloma (MM), to understand what matters most when choosing between treatment options.
- Your answers will help researchers understand what’s important to you when weighing up different MM treatments.
- The results will be used to help develop and assess future treatments, based on what patients value and want.
- Taking part involves a short 20-minute online survey.
- You’ll receive a $70 gift card as a thank you for your time.
The My-PROMPT-2 National Trial
This national trial is testing real-time symptoms feedback from people living with myeloma to help improve how long treatment is tolerated and ultimately lead to better outcomes.
Many people stop therapy early due to side effects. This study aims to change that by putting your experience at the centre of care.
If you have relapsed myeloma and are living in Queensland, Victoria or New South Wales and are on standard therapies you may be eligible.
Downloadable resources
Access our comprehensive guides and infosheets whenever you need them. Download PDFs to read on your device or save for later.
These resources cover everything from understanding your diagnosis to managing treatment, giving you reliable information you can refer back to anytime.
Order your own copy
Prefer a printed version? We can send our guides directly to your home at no cost. Having a physical copy on hand can make it easier to read, share with family, or take notes as you go.
Myeloma – a comprehensive guide
This guide is written for people who have been diagnosed with myeloma, their families, carers and friends.
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