Supporting new treatment access
Have your say on new myeloma treatments. Your submission helps decide which treatments receive government funding.
Which Government committee makes treatment funding decisions?
In Australia, there are two government advisory committees that determine whether to recommend that a medicine or medical technology should be subsidised. These two committees are:
- Pharmaceutical Benefits Advisory Committee (PBAC) – medicines
- Medical Services Advisory Committee (MSAC) – medical technologies
As part of their decision-making process, these committees not only consider how clinically and cost effective a new medicine or technology is, they also invite people with myeloma, as well as their carer/s and family, to have their say on how this medicine or technology would benefit them.
They do this through inviting consumer comments.
What should I include in a consumer comment submission?
The committee asks for you to be as specific as possible in your consumer comment submission. They want to know about:
- your experience of living with myeloma or supporting someone with myeloma.
- how important it is to have new treatments available when you need them
- how living with myeloma affects you or your support network
- your experiences with the drug if you have accessed it on clinical trial
- how your current treatment impacts your life.
Important Note:
When writing your submissions please note the committee don’t want to receive multiple submissions of the same information and they do not need you to explain myeloma or for you to try to summarise the clinical trial data, as this information is provided in great detail from the company.
How to make a submission
PBAC
You can make a submission one of three ways:
Online
Use the latest Consumer Comments Portal
Email pbac@health.gov.au
Letter
Address a written letter to:
Professor Robyn Ward
Chair PBAC at PBAC Secretariat,
MDP 952, Pharmaceutical Evaluation Branch,
Department of Health and Aged Care
GPO Box 9848,
Canberra, ACT,
2601
MSAC
Please submit your comment using one of the methods outlined below:
Online
Online through MSAC Consultations
Email commentsmsac@health.gov.au
Letter
Address a written letter to:
Professor Jonathan Craig,
MSAC Secretariat, MDP 960
GPO Box 9848,
ACT
2601
Downloadable resources
Access our comprehensive guides and infosheets whenever you need them. Download PDFs to read on your device or save for later.
These resources cover everything from understanding your diagnosis to managing treatment, giving you reliable information you can refer back to anytime.
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Prefer a printed version? We can send our guides directly to your home at no cost. Having a physical copy on hand can make it easier to read, share with family, or take notes as you go.
Myeloma – a comprehensive guide
This guide is written for people who have been diagnosed with myeloma, their families, carers and friends.
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