Listen to the podcast on Spotify
In this episode Sandy Roberts sits down with Ann Single from The Patient Voice Initiative.
The Patient Voice Initiative (PVI) is a collaboration between patients (or health consumers), researchers and industry working towards improving the patient voice in the Australian health system. Ann is the coordinator for and a member of its management committee and advisory committee. Ann has over 20 years’ experience in this space.
Sandy Roberts, Myeloma Australia’s Ambassador, has received many questions from our community members about the process of medicines and technology approval here in Australia and Ann will be answering these questions.
Keep listening
Something about the podcasts.
-
Autologous Stem Cell Transplant (Part 1)
Part 1: Narelle Smith is joined by internationally renowned UK haematologist, Professor Gordon Cook, to discuss the use of Autologous Stem Cell Transplant (AuSCT) in…
-
Autologous stem cell transplant (Part 2)
This episode covers the key differences between AuSCT, allogeneic stem cell transplant and CAR-T cell therapy, and concludes with a look at the role of…
-
Bispecific T Cell Engagers – A US Experience
We are joined by special international guest, Dr Adam Cohen. In this episode Dr Cohen talks about the new kids on the block, Bispecific T…
-
A Memoir with Difference – Recovery, Rediscovery and Rebuilding
EJ Furphy sits down with Sandra Russell, author of The Feeling of Cancer. This memoir gives a deeply personal and honest account of her diagnosis…
-
How Myeloma Impacts Different Body Systems and Strategies to Keep People Well on and off Therapy
In this episode Hayley Beer sits down with Donna Catamero, Nurse Practitioner and Director of Myeloma Translational Research at The Mount Sinai in New York…
-
Treatment Approvals Process Explained
In this episode Sandy Roberts sits down with Ann Single from The Patient Voice Initiative.
-
CAR-T Cell Therapy – A US Experience
Hayley Beer, Manager Programs and Services, chats to Dr Tom Martin and Professor Simon Harrison at the Blood Conference. In this episode we hear about…
-
Understanding MGUS, Smouldering Myeloma and Myeloma
In this episode of MyeConversations we talk to international guest Dr Shaji Kumar. Dr Kumar is an expert in plasma cell dyscrasia. We will learn…
-
Younger Persons (Part 2)
Part 2, Geoff chats further to Louise about his advocacy roles, networking with his community, finding a research trial, advocating for himself and finding the…
-
Younger Persons (Part 1)
Part 1, In this episode we hear from Geoff Nyseen about his diagnosis of myeloma when he was 40 years old. Geoff talks to Louise…
Connect with us
Stay informed with the latest myeloma research, treatment updates, and support resources. We offer tailored newsletters for both patients and healthcare professionals with relevant information and community updates.
