This seminar explores end-of-life care in myeloma, focusing on palliative care, decision-making, and how patients and families can be supported through later stages of the disease.
Haematologist Ian Irving outlines the myeloma journey over time, explaining how treatment goals change and why palliative care can play an important supportive role alongside active treatment. He discusses quality of life, symptom management, and navigating complex decisions as the disease progresses.
Palliative care nurse consultant Kay Hodes explains what palliative care involves, addressing common misconceptions and describing how symptoms are managed and how patients and families are supported emotionally and practically.
Senior research fellow Christina Thomas introduces the CarerHelp website, an evidence-based resource designed to support carers of people approaching end of life.
The session concludes with lived-experience advocate Carrie Gibson, who shares personal reflections on advance care planning, uncertainty, and living meaningfully with myeloma.
Keep watching
Watch our other webinars
-
National myeloma update 2025
Prof. Miles Prince’s 2025 myeloma update: from chemo to cutting-edge immunotherapies like CAR-T & bispecifics. Learn about new treatments, access, and the future of care
-
Exploring impacts of new technology
Associate Professor Edwin Hawkins explores how myeloma cells interact with the bone marrow microenvironment and evade immune responses. Using advanced imaging and spatial transcriptomics, this…
-
Your relationships – managing change
Psychologist Natalie Tucky discusses mental health, supportive care, self-advocacy, and wellbeing for people living with myeloma and precursor conditions.
-
Your immune system- Supporting immune function
Learn how multiple myeloma affects the immune system, why infection risk is higher, and how treatments like immunoglobulin replacement, vaccines, and antibiotics are used to…
-
Autologous stem cell transplant
Clinical Nurse Consultant Jenny Paul explains the autologous stem cell transplant process for myeloma, covering mobilisation, chemotherapy, reinfusion, side-effect management, and long-term recovery in a…
-
Your myeloma – individualised treatment targets, where are we now
Dr. Christian Bryant explains myeloma risk, genetic testing, & MRD monitoring to personalise treatment. Learn how test results can guide your care decisions.
-
Your voice shared decision making
Learn how shared decision-making empowers myeloma patients to align treatment with personal goals for better care. Dr. Nathan Close explains the collaborative process.
-
Your movement – individualised exercise intervention
Learn how individualised exercise can be safely adapted for people with multiple myeloma, including guidance on fatigue, bone lesions, treatment side effects, and exercise intensity.
-
Living well long-term – supportive care
Learn practical supportive care strategies for living well with myeloma, including symptom management, infection prevention, bone and kidney health, mental wellbeing, and the role of…
-
Using diet as medicine
Learn how nutrition can support muscle, strength, and recovery during multiple myeloma treatment, with practical strategies to manage side effects and prevent malnutrition.
Connect with us
Stay informed with the latest myeloma research, treatment updates, and support resources. We offer tailored newsletters for both patients and healthcare professionals with relevant information and community updates.
