This seminar explores end-of-life care in myeloma, focusing on palliative care, decision-making, and how patients and families can be supported through later stages of the disease.
Haematologist Ian Irving outlines the myeloma journey over time, explaining how treatment goals change and why palliative care can play an important supportive role alongside active treatment. He discusses quality of life, symptom management, and navigating complex decisions as the disease progresses.
Palliative care nurse consultant Kay Hodes explains what palliative care involves, addressing common misconceptions and describing how symptoms are managed and how patients and families are supported emotionally and practically.
Senior research fellow Christina Thomas introduces the CarerHelp website, an evidence-based resource designed to support carers of people approaching end of life.
The session concludes with lived-experience advocate Carrie Gibson, who shares personal reflections on advance care planning, uncertainty, and living meaningfully with myeloma.
Keep watching
Watch our other webinars
-
Blood, bones and the tip of the iceberg: Myeloma markers and monitoring
Professor Simon Harrison provides a clear overview of how myeloma is diagnosed, monitored and assessed over time.
-
Common myeloma side effects and strategies to improve quality of life
Haematologist Joy Ho discusses common side effects of myeloma and its treatments, with practical strategies to support quality of life. The presentation covers peripheral neuropathy,…
-
Myeloma Carer’s toolkit
Myeloma Specialist Nurse Lucy Murphy shares practical guidance for people caring for someone with myeloma. She discusses the carer’s role, informed decision-making, practical support, communication,…
-
Bi-specific and tri-specific T cell engagers for the treatment of myeloma
Professor Hang Quach explains how bispecific and trispecific T-cell engagers are changing multiple myeloma treatment. He discusses how these therapies work, current and emerging treatment…
-
Travel and myeloma- National myeloma month 2022
Senior Myeloma Specialist Nurse Jo discusses travel and myeloma, including planning with your treating team, medications, medical letters, vaccinations, travel insurance, infection precautions and practical…
-
National myeloma update 2025
Prof. Miles Prince’s 2025 myeloma update: from chemo to cutting-edge immunotherapies like CAR-T & bispecifics. Learn about new treatments, access, and the future of care
-
Exploring impacts of new technology
Associate Professor Edwin Hawkins explores how myeloma cells interact with the bone marrow microenvironment and evade immune responses. Using advanced imaging and spatial transcriptomics, this…
-
Supportive care and mental health and wellbeing
Psychologist Natalie Tucky discusses mental health, supportive care, self-advocacy, and wellbeing for people living with myeloma and precursor conditions.
-
Your immune system- Supporting immune function
Learn how multiple myeloma affects the immune system, why infection risk is higher, and how treatments like immunoglobulin replacement, vaccines, and antibiotics are used to…
-
Autologous stem cell transplant
Clinical Nurse Consultant Jenny Paul explains the autologous stem cell transplant process for myeloma, covering mobilisation, chemotherapy, reinfusion, side-effect management, and long-term recovery in a…
Connect with us
Stay informed with the latest myeloma research, treatment updates, and support resources. We offer tailored newsletters for both patients and healthcare professionals with relevant information and community updates.
