Welcome to Mye Conversations. Myeloma Australia’s podcast series. Hosted by our expert Myeloma Support Nurses, in MyeConversations, we chat to people living with myeloma, interview experts in the field and deliver educational material on elements of this specialty area. This podcast aims to support, inform and empower those living with myeloma, their family, friends and health care professionals. If you have a question or would like to suggest a topic to be discussed please email email@example.com
The History of Myeloma Australia
In our very first episode we meet our president Brian Rosengarten. Brian together with his wife Ros, Bob, Glenys, Donald and Judith started the Myeloma Foundation of Victoria. He tells the story of how it all began and the early years of the foundation. We discuss the growth of the services that are provided and how it has come to what it is today, 25 years later. Brian also gives a beautiful personal account of his role as a carer and how his life changed after Ros’ diagnosis. We also hear about being presented an Order of Australia for his work in the myeloma community.
Guest: Brian Rosegarten OAM Host: Emma-Jane Furphy Length: 50 mins
The Interface Between Myeloma and Infection
In this episode we meet Dr Anna Kalff, a haematologist from The Alfred Hospital in Melbourne. Dr Kalff gives us a recap on myeloma and the immune system, the effects of myeloma on the immune system, the differences between innate and adaptive immunity, how myeloma treatments affect the immune system, what does a suppressed immune system look like, advice on infection prevention, immune base treatments and the implications for infections, risk factors for the person living with myeloma, supportive medications to boost the immune system, minimising risk of infection and timing of vaccinations.
Guest: Dr Anna Kalff Host: Nella Combe Length: 38 mins
All Things Nutrition and Myeloma – Part 1
Part 1: Food and nutrition are a huge part of health and wellbeing that can become quite confusing when diagnosed with myeloma and start treatment. We know that there are common misconceptions relating to food and nutrition and we are so fortunate to have Lauren Atkins from Oncore Nutrition on the show to set the record straight. This is a two-part special where Lauren will discuss and clarify: diet and boosting your immune system, neutropenic diets, sugar and cancer, the relationship between dietary protein and paraprotein, steroids and weight gain, weight loss whilst on treatment and tips for relieving nausea.
Oncore Nutrition – Two peas in a pod cast
Guest: Lauren Atkins Host: Hayley Beer Length: 30 mins
All Things Nutrition and Myeloma – Part 2
Part 2: In this episode we continue the conversation with Lauren Atkins from Oncore Nutrition who clarifies some of the misconceptions relating to food and nutrition. In this second part show Lauren will discuss, the role of complementary medicine during treatment, ways to help increase fluid intake, understanding the role of miracle fruit, prebiotics and probiotics in the myeloma patient, benefits of organic foods and accessing a dietician in the community.
Oncore Nutrition – Two peas in a pod cast
Guest: Lauren Atkins Host: Hayley Beer Length: 26 mins
Complementary, Alternative and Integrative Medicine: A case study
We are joined by our special guest Gail Rowan, Senior Pharmacist at Peter MacCallum Cancer Centre. In this episode Gail talks to us about everything complementary, alternative and integrated medicine through a case study from her clinic. Gail discusses the importance of speaking to the health care team if using complementary therapies in conjunction with myeloma therapies.
Guest: Gail Rowan Host: Emma-Jane Furphy Length: 30 mins
Relapsed and Refractory Myeloma – your questions answered
So why does Myeloma come back and why is there no cure? Why do some people with myeloma respond to certain treatments and others do not? In this episode Professor Andrew Spencer walks us through the new Myeloma Australia resource- Relapsed and Refractory Myeloma- your questions answered which explains these complex concepts. Firstly Professor Andrew Spencer will give us a refresh on myeloma and then go into more detail about relapsed and refractory myeloma, the criteria the PBS set for commencing new treatment, considerations haematologist take into account when a patient relapses or becomes refractory to treatment, understanding why myeloma comes back, how myeloma behaves over time, new symptoms to report to the haematologist, clinical trials and logistical mechanisms to support regional and rural patients on a clinical trial.
Guest: Professor Andrew Spencer Host: Hayley Beer Length: 49 mins
Let’s Keep Active!
In this episode we chat to Travis Hall, an Exercise Physiologist at the Peter MacCallum Cancer Centre in Melbourne. Travis answers some of our listeners questions about exercise but also discusses considerations for starting a new exercise program, best practice in instructing an exercise program, goal setting, mangaing the side effects of myeloma treatments with exercise, fatigue and exercise, cardiovascular and resistant training, the EX-MED program and recommendations for community based exercise physiolgist/physiotherapists.
Guest: Travis Hall Host: Nella Combe Length: 41 mins
Clinical trials and access when you live regionally
In this episode we meet Dr Hasib Sidiqi and Karen Wilde. Dr Sidiqi will give an over view of the importance of clinical trials while Karen will give her experience of being on several clinical trials for the treatment of myeloma.
Host: Hayley Beer Guest: Dr Hasib Sidiqi and Karen Wilde Length: 50 mins
MSAG and the partnership with Myeloma Australia
In this episode we discuss MSAG with Professor Miles Prince. Professor Prince will give us a greater understanding of the role of MSAG and how it works together with Myeloma Australia to influence a positive change.
Host: Hayley Beer Guest: Professor Miles Prince Length: 29 mins
The history of myeloma
In this episode we meet Emeritus Professor Doug Joshua. We examine the origins of myeloma and how this orphan disease has made massive segways in the treatment and care of people living with myeloma.
Host: Nella Combe Guest: Emeritus Professor Doug Joshua Length: 41 mins